Get More at COMMENTYOU.com
thinking of you and wishing u & yours a very happy,peaceful Holiday week end.
How r you doing? whats new with you?
Hope all is well!!!!
I have been busy with life, since the nice weather hit, that swhy I have not been here.
All is great with us and still waiting to sell the house.
Our closing for the other house is June 28.
Please keep us in your Prayers.
thank You and God Bless you
Peace*Hugs*Love
Donna
Monday, April 23, 2007
Mila's friends....
Mila has been so blessed with so many wonderful friends. When I look at all the wonderful things that all of you have taken the time to send to this precious little granddaughter of mine, it brings tears to my eyes. You have made such a difference in her life. From a pack of stickers, to markers, to crayons, color books, reading books, stuffed animals for each holiday and some not for any holiday, to movies and clothes and financial support and on and on and on....You humble me with all that you have done. Mila's days confined to her bed have been made easier by the kindness of her internet family. There is a joy you have brought into her life that is immeasureable. Not to mention what you have done for Andi and this family. I will not name names, because I would not want to leave anyone out. The fundraisors, the personal help....you have all made a tremendous difference in stopping the stress that was so prevalent in Andi's life when Mila was diagnosed. You my dear and loyal friends have made a situation that is in itself almost unbearable....bearable. You took away the outside factors and let the focus be where it was intended......our little Mila.
Mila has had some pretty good days. The extra pain med seems to be doing what hospice wanted it to do. We hear words from Mila like..."I am so brave, I am so proud, I am so happy....words that tell what this little angel is feeling. She has actually been coloring with markers again....thanks to those who send these to her....she has a huge bag and picks specials colors...she always starts with pink, then red, then purple....then light blue..."like papa's eyes" she says. She loves rainbows and heart stickers and recently stickers given to her by a very special friend, they say "I am a child of God." All these things bring a smile to her sweet little face and laughter to her lips.
Again, I hope all of you know how much you are loved and appreciated. The things you have done for this family are beyond words...and you ask nothing in return except having Mila as part of your lives...what angels you are.
Hugs to all and may you have a wonderful week.
Sher
Thursday, April 26, 2007
Mila Update.....
Current mood: restless
Things are going good in Mila land!! Hospice came over and even told me that Mila is not showing many signs of the final stages. There is always the chance she can pass suddenly, or it can change very fast...but they seemed very positive. Mila has been in amazing moods. Laughing, drawing, and saying cute little made up things!! LOVE IT! I am enjoying ever moment that I have and even if it is hard and I get tired, I am blessed.
I wake up every morning between 5-6 AM. That is normal but I stay awake until midnight so I can do her medication. I then take forever to fall asleep and I cannot take sleeping pills....or else I over sleep. I normally wake up to the first words..."MOM SHOWS!!" "MOM POC-CORN HOT" "MOM SIT UP" "MOM TABLE BACK" "MOM CHANGE ME" and in the first 3 seconds of opening my eyes....and then..."Morning...Thanks for sleeping with me" I love it, it means the world to me. Then it is, "Nana, I want Nana" That happens at around 8-9. Nana comes in and it is...."Scrabble eggs" Mommy make them, Nana feed them...or switched around!! I then will sometimes shower after Mila says..."stinky" and get ready while Nana helps with watching BOB or doing other projects. I then come in and it is constant, warming up the popcorn, medication, switching bob, and snacks..... Also changing her. Her little back hurts and legs so changing her takes a long time. I have to make the movements slower not to hurt her next or disturb the tumor. I just have to make sure every lift supports her head. We are in size 5 diapers and they are small for her tummy. The Dexamethasone causes swelling and her tummy is very distended. I am in search for something. Then nap time. She does not like to fall asleep unless I "hold hands" I try not to fall asleep, even if tired or I pay for it that night. After nap time I normally give her the bath. It takes about an hour plus to completely finish her bathing. She is getting heavier now and lifting a sack of 40 pound potatoes...it heavy!! She is so cute though, I lift her and she says...
"Wooooooooooaaaaahhhh! MILA out!!" We then use...cute tips in her ears and bananas (detangler) in her hair! She gets all ready and looks so fresh out of the tub. Dressing her is also hard for me. I feel horrible when she says owie when I pull the shirt over her head. She has no ability to help so I must do all the pushing and pulling. I need little T shirts that are a v-neck or snap button tops like for new born's. Back in the room we watch more BOB and just play. Through out the day she is on medication, the pain patch gets switched every third day. Then we have the suppository and Lasix days. She likes to sleep in her side. I have her comfortable with a small rolled towel to help support her legs. She sweats a lot from the medication but then I have to be careful for her not to catch a chill. I give her medication at the end of the night and then she tells me tired and we "hold hands again...say our prayers" and she is fast asleep in no time. I then stay up until midnight so that I can give her midnight med's...then, we start the day again.....
Just a day in the life. I love every minute of it! Most of the time I spend laughing at the funny little things she says and does!! She is just perfect! My days are perfect...I cherish them and take them in. I am grateful for her and hope she knows she is an example to me. I only hope to be so strong, spiritual, loving....I only hope to be. I love being in her presence. I look forward to starting a new day....that means I will have new stories to tell.
Big blessing to you all this weekend.
Take care and we love you for all you have brought to us with your friendships!
Andi and Miss Mila
........Being is just that, being with you....is everything..........
